First the good news
Jan could not have been better placed for her care than the Hospital Nacional de Paraplejicos in Toledo. This fine hospital is the premier centre of excellence in Spain for the treatment of spinal cord injuries and can be compared to the UK’s world-renowned National Spinal Injuries Unit at Stoke Mandeville Hospital. (See lower down this page for more about the hospital).
The not so good news
Unfortunately,this level of comprehensive care is understandably not widely available elsewhere in Spain. It has meant that Jan has been some five hours drive from home and her husband Keith has had to stay in a small local hotel near the hospital to be with her. This complicated both their lives and and was quite a financial burden. Something that they could do without as they battle together to advance Jan’s rehabilitation.
Now Jan is on the way home
It looks as if the hospital can do no more for Jan as an inpatient and she will be discharged on June 14th. This changes the focus for the management of her disability but does nothing to defray the costs. She is still basically paralysed from the chest down and needs specialist items and services to help her rebuild her life. So, if you have not already donated – please do so now and help us to help Jan and Keith.
Please Donate now and help someone who has suffered serious life-changing injuries through no fault of her own. You will be taken to our GoFundMe page. GoFundMe is one of the best known fundraising organisations in the world. They have raised more funds than any other organisation – $5 billion to date. They charge us no platform fees but if you donate, you will be asked to make a small contribution. This is at your discretion and you can choose how much you want to pay in addition to your donation. On that page you will find a link to bring you back here if you want to read more about Jan’s story.
We are looking to buy specialist equipment and services for Jan. The exact items will be known after a needs assessment which will be carried out once she gets home. However, the anticipated items include: specially modified controls for her iPad so she can operate it without the use of her hands. This is the main way she can entertain herself and keep in touch with friends and family. She also needs a special wheelchair that enables her to stand. This greatly reduces the chance of pressure sores and osteoporosis. Keith and Jan will also need an adapted vehicle which can carry her chair and 2-3 people. Other considerations include adapting their accommodation for wheelchair access, modifying a bathroom and provision of an orthopaedic bed. Significantly, we are also looking at providing full-time care until alternate sources of funding can be found.
A day out from the hospital: advice on loading and unloading clients in their wheelchairs
More on this wonderful hospital
The centre was inaugurated on October 7, 1974 by the then Princes of Spain, Don Juan Carlos and Doña Sofía. Since then it has been continually expanded and updated. The style is very much one of multidisciplinary teamwork with a strong commitment to integrated rehabilitation. This includes bringing together the social, educational, work-based, psychological, therapeutic and cultural dimensions of people’s lives.
Teams consist of nursing professionals, physiotherapists, occupational therapists, social workers, clinical psychologists, psychiatrists and, where necessary, a choice of many other professionals that are needed for the management of early acute phases as well as the longer-term rehabilitation process.
The hospital also has a very strong research unit encompassing both traditional and highly innovative new techniques and technologies. These include in-depth studies of nerve tissue, its plasticity and possibilities of axonal repair, the mechanisms of neuroinflammation, sensory and motor function, the use of biomaterials, how to apply bioengineering and neurophysiology techniques, the possibilities of neurorobotics, virtual reality and potential therapeutic targets for neurodegenerative diseases.
We are determined to do the best for Jan. If you feel the same way please help us now.